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Nutrition for Glycogen Storage Disease - Ingredients to Avoid and Ingredients Allowed

These instructions are for caregivers of Children's Hospital of Philadelphia patients who have glycogen storage disease (GSD).

Important information:

Learn more about glycogen storage disease.

Patient instructions ingredients to avoid:

  • Fructose

  • Galactose

  • Lactose

  • Sucrose

  • Saccharose

  • Honey

  • High-fructose corn syrup

  • Corn syrup (contains fructose)

  • Beet sugar

  • Brown sugar

  • Cane sugar

  • Invert sugar

  • Agave nectar/syrup

  • Maple sugar

  • Powdered sugar

  • Raw sugar

  • Caramel

  • Carob

  • Maple syrup

  • Molasses

  • Sorghum

  • Turbinado

  • Casein

  • Whey

  • Sorbitol

Patient instructions ingredients allowed:

  • Glucose

  • Dextrose

  • Maltose

  • Maltodextrin

  • Dextrin

  • Barley syrup

  • Brown rice syrup

  • Tapioca syrup

  • Pure corn syrup

  • Corn syrup solids

  • Karo dark corn syrup (98% glucose)

  • Karo light corn syrup (97% glucose)

  • Karo pancake syrup (94% glucose)

  • Sweet ‘N Low (saccharin)

  • Equal (aspartame)

  • Splenda (sucralose)

  • Stevia

  • Truvia

  • Xylitol

  • Mannitol

  • Erythritol

  • Hydrogenated starch hydrolysates

Call your CHOP team with any questions or concerns.

Division of Endocrinology and Diabetes

8:30am-4:00pm, Monday-Friday
215-590-3174 and ask to speak with your healthcare provider

Evenings, weekends, and holidays
215-590-1000, ask the hospital operator for the endocrine fellow on-call

Urgent concerns
215-590-1000, ask the hospital operator for the endocrine fellow on-call

 

Reviewed on February 14, 2023, by Heather McKnight, CRNP; Nicole Stewart, RN

© Children's Hospital of Philadelphia 2024. Not to be copied or distributed without permission. All rights reserved. Patient family education materials provide educational information to help individuals and families. You should not rely on this information as professional medical advice or to replace any relationship with your healthcare provider.

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