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Sickle Cell Disease and Strokes

These instructions are for Children's Hospital of Philadelphia (CHOP) patients with sickle cell disease who are going home following a stroke.

Important information:

Children with sickle cell disease, especially those under the age of 10, can have a stroke. A stroke happens when part of the brain does not get as much blood as it needs. Sickle-shaped cells can damage and block blood vessels that supply blood to the brain. As a result, the brain does not get enough oxygen.

Patient instructions:

Your child has had a stroke but is now ready to go home.

Continue to give medicines as prescribed.

Keep your follow-up appointments.

Contact your CHOP hematology team with questions or concerns or if your child develops any of the symptoms listed below:

  • Headache

  • Sudden weakness or tingling of arms or legs

  • Seizure

  • Painless limp

  • Fainting

  • Changes in speech

If your child leaves the hospital with any of these symptoms, call your team if they worsen.

Division of Hematology

215-590-3535

Sickle Cell Center

CHOP Main patients:
8:30am-5:00pm, Monday-Friday
215-590-3437

Voorhees patients
8:00am-4:30pm, Monday-Friday
856-435-7502

King of Prussia patients:
8:00am-4:30pm, Monday-Friday
267-425-3320

Weekends, holidays and every day after
5:00pm, all patients: 215-590-1000, ask the
hospital operator for the hematologist on call.

For non-urgent issues, send your team a message in the MyCHOP portal.

 

Reviewed on June 22, 2023, by Alexandra Kaspin, RN, MSN

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